A series of articles in the Sage Journal “Big Data & Society”
Among others, with contributions from Barbara Prainsack, Alessandro Blasimme/Effy Vayena/Ine Van Hoyweghen und Linnet Taylor/Nadezhda Purtova.
Why do we regulate individual genetic data and familial data differently?
Speaker: Mark Taylor (Melbourne Law School)
Thursday, Oktober 24, 12:30 in lecture hall Y15-G-19 (Irchel campus).
The limits of liberalism – when solidarity must prevail over personal choice
Speaker: David M.R. Townend (University of Maastricht)
Friday, Oktober 25, 12:30 in lecture hall Y15-G-19 (Irchel campus).
A contribution by Prof. Ernst Hafen in “Zukunftsblog” of the ETH Zurich
Obtaining relevant patient data for pharmaceutical and medical research in Europe is no easy task. Unless we keep pace in the international arena, our hospitals will have to rely exclusively on artificial intelligence solutions from American and Chinese companies.
Read the full article here
The Life Science Zurich Business Network organizes LIFE SCIENCE ZURICH IMPACT – CAUSE OF HEALTH on the 3rd of February 2020 at the Technopark Zurich.
The conference will provide a platform for scientists from academia and industry to present their life science projects to potential collaboration partners as well as investors.
THE CAUSE OF HEALTH: Medicine today largely focuses on studying the cause of illness in search for cures. However, we know remarkably little about how individuals stay healthy. Cause of health research will rely on data from healthy individuals.
The conference includes keynotes, parallel sessions as well as an investor track and 1 : 1 partnering meetings.
Find more information here
Click to view flyer and application information for startups and investors
A contribution by Prof. Ernst Hafen in “Zukunftsblog” of the ETH Zurich
«With the personalisation of education, boundaries between disciplines and levels, and between education and training, will become increasingly blurred. A continuous learning space will emerge.»
Digitalization is universal and affects our education system. Ernst Hafen depicts a fascinating vision of a possible future: Algorithms help to choose the best possible choice of field of study, no more overcrowded lecture halls thanks to individually composed small learning groups and modern online learning platforms.
Read the full article here
Data to the People – A Solution to Healthcare?
Date: 1pm, January 17th 2017: Location: Promenade 73, Davos Dorf ‘Caspian Week’
Two factors challenge the current healthcare space: The quest for better diagnostics and treatment options to increase the precision of healthcare services and the need to control its related socio-economic cost. Personal patient data, and all its aspects; from data generation to complex data processing and its adequate distribution, affect the above challenges structurally.
Present panel members are at the forefront of leading the healthcare space into the next phase of integrated data management and utilization. They support the concept of citizen-controlled data access pioneered by MIDATA.coop, which enables citizens to securely store, manage and control access to their personal data by helping them to establish and own national and regional not-for-profit MIDATA cooperatives. MIDATA’s initial focus will be on health-related data since these are most sensitive and valuable for one’s personal health. The MIDATA cooperatives act as the fiduciaries of their members’ data. MIDATA members can visualize and analyze their personal data and can actively contribute to medical research and clinical trials by providing access to their sets of personal data. MIDATA cooperatives provide novel and fair platforms for commercial partners to develop personal data services and tools. This panel addresses fundamental questions of:
The moderators are: Prof. Ernst Hafen and Dr. Kaspar Bänziger RSVP: hafen@imsb.biol.ethz.ch
Prof. Ernst Hafen, ETH Zurich, MIDATA.coop
Prof. Effy Vayena, Univ. Zürich, Harvard Medical School
Preeti Sinha, YES Institute, India
Dr. Klaas Zuideveld, Caris Lifesciences, Dallas
David Haerry, EUPATI-IMI, Brussels
Dr. Elsy Mankah Ngwa, ETH Zürich
Massimo Morino, Innovation for Health, Inc. Milan
Prof. Serge Bignens, Bern University of Applied Science and MIDATA.coop
Das von Prof. Thomas Gächter (UZH) erarbeite Grundlagenpapier zum “Recht auf Kopie” wurde von den Vereinsmitgliedern Mathis Brauchbar, André Golliez und Ernst Hafen in Diskussionen mit verschiedenen Exponenten der Verwaltung und des Parlaments eingebracht. FDP Nationalrat Fathi Derer (VD) hat ein entsprechendes Postulat eingebracht. Am 12. November 2015 hat der Bundesrat die Annahme des Postulats beantragt. Er möchte, dass das Thema in die Revision des Datenschutzgesetzes aufgenommen wird. Der Verein hat damit einen wichtigen Meilenstein in Richtung digitale Selbstbestimmung erreicht. Herzlichen Dank allen Beteiligten! Posulat Recht auf Kopie 
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